Voices of Epilepsy -- a podcast series
One in ten Americans will experience a seizure in their lifetime. When the average person hears the word “seizure,” they usually think of full body stiffening, twitching, and convulsions, what we might call a tonic-clonic or grand mal seizure. In fact, seizures involve a wide range of experiences that are surprisingly hard to describe. This narrative podcast series highlights the rich and diverse experiences of people with epilepsy.
The podcasts were created by Sue Chong, Jack Withers, and Megh Marathe, drawing upon in-depth interviews with twenty people with epilepsy from all walks of life in southeast Michigan. The interviews were conducted as part of Megh's PhD research.
Special thanks to our collaborators and mentors Russell A. Derry from the Epilepsy Foundation of Michigan, and professors Kentaro Toyama, Sucheta M. Joshi, Elizabeth F. S. Roberts, Tiffany Veinot, and Joyojeet Pal from the University of Michigan. This project was supported by the University of Michigan's Office of Research, Rackham Program in Public Scholarship, UMInDS, and UROP program.
The podcasts were created by Sue Chong, Jack Withers, and Megh Marathe, drawing upon in-depth interviews with twenty people with epilepsy from all walks of life in southeast Michigan. The interviews were conducted as part of Megh's PhD research.
Special thanks to our collaborators and mentors Russell A. Derry from the Epilepsy Foundation of Michigan, and professors Kentaro Toyama, Sucheta M. Joshi, Elizabeth F. S. Roberts, Tiffany Veinot, and Joyojeet Pal from the University of Michigan. This project was supported by the University of Michigan's Office of Research, Rackham Program in Public Scholarship, UMInDS, and UROP program.
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Perception vs. realityThis episode addresses misconceptions about epilepsy, and shows how bystanders, healthcare professionals, and media creators can help.
It can be downloaded here. |
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Tailoring life to epilepsyThis episode describes the wide range of life changes that people make to manage the risk of seizing, and urges employers to support people through these changes.
It can be downloaded here. |
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Describing the indescribableThis episode showcases the diverse ways in which seizures are experienced by people, and steps toward creating a patient-centered vocabulary for seizures.
It can be downloaded here. |